Show Printable Version Search This Thread Advanced Search   Fight SMA Message Board Register  |  Login  |  Search  |  Chat Fight SMA > Message Board > Parents of SMA Children   Username: Password:   Remember Me? Thread Tools  | Search This Thread  Reply   Author Comment   View Member ProfileSend Private MessageSend EmailFind Member's Threads Find Member's Posts pnaftali Registered: 03/19/07 Posts: 1      03/19/07 at 06:51 PM Reply with quote #1 My daughter Mikelle was diagnosed in 2005 with SMA TYPE I.  She will be 3 in September.  Just want to leave my email address for anyone who has any questions.  Or you can view her website http://www.help-mikki.com   paula@centuryvanlines.com View Member ProfileSend Private MessageSend EmailFind Member's Threads Find Member's Posts kylesmom Registered: 04/23/07 Posts: 1      04/23/07 at 08:07 PM Reply with quote #2 I loved her website and would love to see new pictures. Kyle, my son, is 2 1/2 yrs now with type 1 and uses the niv protocol. He has a organization called Kyle's Pillow Project. I would love to make some pillows for your little girl. check it out here: http://www.oursmaangels.com/kyle Previous Thread | Next Thread Reply   Bookmarks    Digg  del.icio.us  StumbleUpon  Google

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