HelenBaldwin
Registered: 08/05/06
Posts: 7
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Reply with quote | #1 |
Greetings to all! Many hugs for birthdays, new babies, and exciting accomplishments; even bigger hugs for new diagnoses, new angels, angel anniversaries, surgeries, and all the tough decisions that come with SMA. I’ve tried to keep up, although the chaos of life has kept me from writing much lately. Some may be relieved 
As always, I am looking for names for the special dedication in The Jeffrey Journey. For those who don’t know about the book, it is based on notes I kept during our brief time with our third baby (Jeffrey) and is accompanied by a CD of lullabies my mother wrote for him. One of my favorite parts of the book is the special dedication, with one section honoring those with SMA and another serving as a memorial. It is quite an emotional experience to see so many names in one place - there are already over 1000 for the next printing.
I cannot reach every SMA family myself, so if you keep up with other SMA families individually or thru a website, chapter, mailing list, fundraiser, etc., PLEASE pass this on or share my e-mail address with them. Admittedly, there may be a bit of obsession mixed in with the passion by now, but I do want to include as many ‘family’ members as possible and am hopeful the efforts will in some way help contribute to raising awareness.
If you would like to submit a name for the dedication, all I need is the name as you would like it listed, including a nickname if desired, and whether it belongs in the honor or memorial section. No other information is necessary. Once a name is included in the special dedication, it will remain in all future printings, although changes can and will be made as necessary. If you are unsure whether or not you have submitted a name, don’t hesitate to ask - it’s easy to check. Some have assumed I have already listed their name(s), but unless I have received permission, the first name or initials only are listed in a third section. There are no restrictions for the dedication regarding age, date, location, number of names, etc.
Information about the book is located at balderdashe dot com/the-jeffrey-journey/index dot html. My brother has fixed a link to a few samples of the music, too! The book/CD is still $26 with minimal postage (and tax if in NC). Please contact me (jeffreyb at skybest dot com) for more information and/or ordering.
A final note - I send out an occasional e-mail newsletter with quite a few SMA sites, announcements, etc., I think might be helpful in some way. If you didn't receive one this week and would like to be placed on the list, just let me know! Thanks, Helen
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Helen Baldwin
The Jeffrey Journey
jeffreyb@skybest.com |
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