HelenBaldwin
Registered: 08/05/06
Posts: 7
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Reply with quote | #1 |
Greetings! I’m once again/still looking for names for the special dedication of The Jeffrey Journey, a book about our brief time with our baby, Jeffrey (whose 11th birthday we celebrated last month!). One section of the dedication honors those with SMA, while another serves as a memorial.
There are now over 1000 dedication names ready for the next printing, which will hopefully be the latter part of this year or the early part of 2009. It is quite an experience to read so many names in one place and to realize there are so many MORE.
There are no restrictions for submissions!!! Names have come from all over the world and include all ages and dates. Some families have sent several names.
If you would like to submit an entry to the dedication, all I need is the name as you would like it listed, along with a nickname if desired, and whether it belongs in the memorial or honor section. No other information is included.
Once a name is included in the dedication, it’s there for future revisions. If you are unsure as to whether or not you have already done this (or if a name needs to be moved to the memorial or changed otherwise), please don’t hesitate to ask! It’s easy to check, and some who assumed they had already submitted a name learned they hadn’t. Also, be sure to check if you’ve had another child diagnosed within the past few years.
For more info about the dedication, book, or CD of original lullabies that accompanies the book, or to inquire about ordering, feel free to email me. You can read a little more about the book and listen to a few snippets of the CD at the web site (http://balderdashe.com/the-jeffrey-journey/index.html). I hope to take the site reigns from my brother before too long and update it in my quest to exercise my brain, if not my body!
Thanks again to all who have contributed to this ongoing 'community' project and for sharing this with other SMA families you know thru mailing lists, chapters, web sites, chats, etc). Your help is most appreciated!!!
Also, I have been trying to put my address book back together after its maddening disappearing act and finally got it together enough to send out an SMA 'stuff' update last week. If you usually receive one but didn’t (and would like to), please let me know so I can send it and add you back to the list. Likewise, contact me if you've never received one but would like to begin. Someone suggested a blog to replace the updates, and as soon as my fellow SMA mom/partner in crime and I can figure out what we’re doing and when, that’s one thing we’re aiming for in our upcoming venture. ‘They’ say we need to learn new things in old age to keep our brains alert. My brain snickers at any project that even hints of dabbling in technology, but I AM an optimist 
Happy, healthy summer to all, and thanks again! Helen Baldwin (jeffreyb@skybest.com)
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Helen Baldwin
The Jeffrey Journey
jeffreyb@skybest.com |
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