Chante860
Registered: 01/08/09
Posts: 1
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Reply with quote | #1 |
   Hello FightSMA World !
My name is Chante and Im from New York. Im 16 years old living with SMA type III. When I began researching my disorder, I started to cry. Even while Im writing this Im begining to tear. Looking at all the young infants and toddlers dying from this disorders makes me so sad and wanting to help. I want all the parents to keep their head's up and fight SMA. With support we can all find anything to stop SMA. Living with this disorder makes me sad sometimes and I begin to get anxiety. I know its tough to live with It or your child Is suffering with this but all we can do is suppor & fight. Think Postitive & Stay Postitive. God is going to make way to find a cure but just have FAITH. I hope they find a cure for all types of SMA.
Please contact me by email : chanteharriotte@yahoo.com
IS THERE ANYONE THATS HAS SMA TYPE III ? PLEASE REPLY
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God is Good |
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alhofosho
Registered: 06/16/09
Posts: 3
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Reply with quote | #2 |
hi, my name is alex. i have sma type two. i am 15 years old. although everyone who has this disease is sad all the time. i never shed a tear. this disease is not bad to me at all! i am living an amazing life. more so then any able-bodied person! |
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